The family of five-year-old boy who's been battling leukemia for nan past three-and-a-half years are desperately trying to raise £1 cardinal truthful they tin return him to nan US for an experimental curen that is his 'last chance'.
Dillan Ramsey-Aksehir was diagnosed successful May 2020 astatine conscionable a twelvemonth aged and told he had a 93 per cent chance of survival.
He was forced to spell done 3 years of aggravated chemotherapy that made life 'hell' for him and his family and they initially thought he had beaten nan illness.
However, he relapsed successful August 2022 and past again successful March and August this year.
Before nan shocking ordeal, mother-of-three Amy Ramsey, 37, from London, thought her happy football-loving boy had a sprain and bruises from kicking a shot astir -before a test revealed nan truth.
Speaking to MailOnline, Amy said nan past fewer years person been traumatic arsenic Dillan had to acquisition a bony marrow transplant arsenic good arsenic nan chemotherapy.
Now, doctors person tally retired of options in the UK and nan family has flown to Washington successful nan US for further treatment.
Dillan Ramsey-Aksehir is still each smiles contempt battling Leukemia for nan past three-and-a-half years. The five-year-old was diagnosed astatine property 1 successful May 2020
Speaking to MailOnline, mum-of-three Amy, from London, said she's successful 'fight mode' arsenic nan family flies to nan US aft moving retired of curen options successful nan UK. 'I won't extremity until I find a cure. It's been years of hellhole watching my kid suffer,' she said (family pictured)
Dillan has relapsed 3 times contempt having chemotherapy for 2 years and a bony marrow transplant
The family is seeking £1million successful GoFundMe donations to screen treatment, accommodation, flights, insurance, surviving costs successful nan US and bills backmost home. Already much than half nan costs has been covered.
'I americium successful conflict mode, I won't extremity until I find a cure. It's been years of hellhole watching my kid suffer, and everyone other astir maine including myself. We request a break and we request a cure,' Amy said.
'I americium really hoping this is nan missing portion to nan puzzle. America is 10 years up of nan UK successful aesculapian treatment. Everything is truthful costly here, but besides measurement much advanced.'
Treatment successful nan US started connected October 19 and Dillan will apt stay location for a period earlier going backmost to London for 1 past bony marrow transplant.
Amy said this will consolidate nan remission he will hopefully summation from nan American curen trial.
'This is our past chance, we had nary different options. The infirmary helped america find this proceedings successful America truthful we packed our bags wrong 3 weeks, took each 3 kids and left. My mum came pinch america she kindly took clip disconnected activity to thief america out,' Amy said.
Little Dillan hasn't lived a carefree life compared to different toddlers and has spent countless days wrong infirmary walls.
Before nan youngster was diagnosed Amy noticed he started waking up successful nan mediate of nan nighttime screaming arsenic if he was successful pain.
'I took him to nan doctors, they checked him complete and put it down to nightmares aliases slumber regression. They conscionable couldn't find thing incorrect pinch him,' Amy said.
'A week later he started to limp and he had bruising connected his legs. He's rather boisterous and loves shot truthful we conscionable assumed he kicked thing by mistake.'
She took Dillan backmost to nan expert who told her 'it looks for illustration a sprain and because of his property will heal successful a week aliases two'.
Treatment successful nan US started connected October 19 and Dillan will apt stay location for a period earlier going backmost to London for 1 past bony marrow transplant. 'This is our past chance, we had nary different options,' Amy said
The family is seeking £1million successful GoFundMe donations to screen treatment, accommodation, flights, insurance, surviving costs successful nan US and bills backmost home. Already much than half nan costs has been covered
Though small did Amy and partner Oguz Aksehir cognize their world was astir to beryllium turned upside down.
A fewer days later, Oguz noticed Dillan had 'really swollen lymph nodes connected his cervix and jaw'.
'I booked him successful pinch nan expert again but it was a 48-hour hold to get him seen because astatine that clip Covid was still rather caller and everyone was being ace cautious,' Amy said.
It was during that waiting play that Dillan started to get mini bruises astir his eyes.
When nan family yet saw a doctor, they were successful nan room for 2 minutes and nan expert took 1 look a Dillan and knew precisely what was wrong.
'We were fixed 2 referral missive to sewage to A&E - 1 for his limb and 1 for his lymph nodes and facial bruising,' Amy said.
'I retrieve getting to nan infirmary and they said that Ozzy couldn't travel in. I thought we'd conscionable get sent location pinch antibiotics.'
Prior to nan tragic ordeal, doctors didn't cognize what was incorrect pinch Dillan because he was only 12 months aged and thought he had a sprain. 'I thought we'd conscionable get sent location pinch antibiotics,' Amy said
To this time nan 'worst 2 hours' of nan full ordeal was erstwhile doctors confirmed Dillan has a uncommon shape of humor crab called B-cell leukemia and he would request three-and-a-half years of chemotherapy
Now nan family tin only believe for a miracle. So acold much than £500,000 person been donated to Dillan's GoFundMe page
First they were seen by an orthopaedic surgeon who took an x-ray of Dillan and said there's 'absolutely thing incorrect pinch his legs'.
This near Amy emotion utterly confused and not knowing what to do arsenic her one-year-old wasn't walking.
'He told he maine thinks it's a humor rumor and that it's affecting his hips. I had perfectly nary thought what that meant,' she said.
To this time nan 'worst 2 hours' of nan full ordeal was erstwhile doctors confirmed Dillan has a uncommon shape of humor crab called B-cell leukemia and he would request three-and-a-half years of chemotherapy.
What is Leukemia and what are nan symptoms?
Leukemia is crab of nan body's blood-forming tissues, including nan bony marrow and nan lymphatic system.
Leukemia symptoms vary, depending connected nan type of leukemia. Common leukemia signs and symptoms include:
- Fever aliases chills
- Persistent fatigue, weakness
- Frequent aliases terrible infections
- Losing weight without trying
- Swollen lymph nodes, enlarged liver aliases spleen
- Easy bleeding aliases bruising
- Recurrent nosebleeds
- Tiny reddish spots successful your tegument (petechiae)
- Excessive sweating, particularly astatine night
- Bone symptom aliases tenderness
Source: Mayo Clinic
The family were told to drawback their worldly arsenic location was an ambulance waiting extracurricular to return them to Great Ormond Street Hospital for Children.
A staggering 90 per cent of Dillan's assemblage was ridden pinch crab and it had dispersed to his spinal fluid, truthful curen was required consecutive away.
A portacath was inserted into his thorax and small Dillan became truthful traumatised by nan acquisition pinch nan cannulas that he was terrified anytime personification wearing a disguise entered nan room.
Due to nan harshness of nan chemotherapy, his look had dropped connected 1 broadside from nan chemotherapy, he mislaid his hair, eyebrows, eyelashes and he mislaid 'so overmuch weight'.
Steroids made Dillan emotionally detached that Amy thought her small boy hated her.
'I'd laic successful furniture astatine nighttime crying thinking, what does he deliberation of me? He must think, why is my mummy letting this hap to me?'
'As a family we made a pact to make this caller life our caller normal truthful Dillan has nary thought that he's immoderate different.
'I'm truthful grateful for immoderate clip I get pinch some kids together arsenic a family, I conscionable want to pinch myself, moreover if we're each doing thing arsenic elemental arsenic lying successful furniture together.'
In February 2023 Dillan scope nan doorbell and was declared crab free - a time nan family had been waiting for.
But unluckily a period later nan crab returned for nan 3rd time.
Dillan began car t-cell therapy successful April and gave him and nan family a caller hope. Though by June nan deadly illness was increasing faster than he was recovering.
Amy and Oz were brought successful and asked thing nary genitor wants to perceive - really they would for illustration Dillan to pass.
They were told Dillan could nary longer beryllium cured astatine Great Ormond Street Hospital - aliases successful nan UK - and that he was now successful palliative care.
Now nan family tin only believe for a miracle. So acold much than £500,000 person been donated to Dillan's GoFundMe page.